WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Friday, July 1, 2011

Ups, Downs, and Puppies

Evalyn visiting with her great- grandmother on Jonathan's side. 
                You want the good news or the bad news first?..... Lets do bad, nah lets mix it up. The bad is something is that wrong with our only car and it's expensive.And I did a horrible, terrible, job taking pictures in June. The good news is that Jonathan GOT A JOB! It's a part-time job, in accounting, and it's only 3 miles away. It's very entry-level and a company that is just starting but has to potential to turn into something big. More bad news is that I seem to incapable of being totally overjoyed to have received what we have been praying for. WHY? Because I have fear, and apparently not "perfect love". This is me opening my heart...... I fear being alone with Evalyn and being too tired to take care of her the best that I can, not that I'm afraid for her safety, I just want to enjoy my time with her. I fear not being able to get my work completed and keep my insurance. Most of my babysitters have become unwilling or unable to help out very much and it is so hard to work here at home, even when she is asleep. Then there is the dogs, dishes, laundry, dinner, and of course my bed is ten feet away.  I work so much better down the street in my pop's office. When you have been sick for so long and everyone else starts to be able to return to real life, and you can't, even  after 93 days, it can get you down.
I finally got an edible arrangement, and we got dipping chocolate for  it. 

Rileigh an Corynne came over for my B-day, helped cook, and we watched 'Across the Univers'e!

            Exciting news is that if I'm feeling ok, I'm going to a journaling /writing retreat at the monastery in Conyers. I'm really excited about it and hope it not only helps my writing skills but gives me time to be alone with the Lord. You know, when I first got out of the hospital I had such a hungry to seek out the Lord. The last few weeks, since that first bad steroids crash, I have not had that same intense hunger. I was talking to Jonathan today and we both agreed that you pray and study and seek even when you don't feel like it, just like you choose to love when you don't feel like it. I'm deciding more and more that like is not about being happy or feeling like it. It's about having an inner joy and spark that only comes from seeking God. Well, that's was I was thinking today anyway.
Daddy and Evalyn going on a ride.

             Evalyn is walking laps around me, getting bump and bruises, and getting cuter everyday. She is defiantly testing the "no, that's not yours more" before she was like "ok", now she gives me my own look of " oh yea, watch this." Gosh, punishing a child is so hard, I bet God hates it too. We are starting this week putting her in her crib if she continues to disobey for a time out, I'll let you know how it goes. She is such a job, I love that she is now bringing us book to read, it's so sweet. I've started changing them out as my cuz Shanna does..... and as her husband says, " We have a puppy, not a baby."

             I love puppies.....

1 comment:

  1. You take the good, you take the bad, you take them both and there you have...well, you have a 1980s sitcom "The Facts of Life"...but that's how it is always...ups and downs. I am thankful that Jonathan found a job. I am sorry about your car woes; we have been there many times ourselves. I wish there were something I could do to help babysitting-wise but obviously there isn't. It will all work out as it it meant to...

    I wish I could go on that retreat with you. I hope that you are able to go and have both a restful and enlightening experience.

    Emilie rarely every slept or spent a lot of time in her playpen so it is our "time out" spot. Mostly she gets put in time out for standing on her chair or on the sofa. We just do it for a minute but sometimes that 60 seconds seems like an eternity! This is the time when they are testing boundaries and limits. It is frustrating, it is tough, but that's a toddler for you. Emilie definitely has a "oh yeah, Mama?" look. Sometimes it makes me want to laugh but I have to be stern!

    There are some books that have been "out of rotation" for a long time because I really don't like 'em. ;) I think rotating books and toys is good for them though!

    Love you cuz!

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