WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Saturday, July 30, 2011

This must be God's Plan because it Isn't mine


                      Evalyn at the pool. Uncle Daniel came to help since I can't get in yet.

               As most of you know, Jonathan started work this past Thursday. We are very proud of him but also miss having him around. He is working with a lot of ladies that like to cook so maybe I won't worry about him eating well. "It's not glorious accounting" he says. Whatever that is....   Here is what goes through my mind and on facebook.

Me: I put him through school for 2 years and what does he do? Goes off and gets a job and leaves us. 
Others: That was the idea, right?
Me: Yep, but all this other stuff was not the idea. 

            Sound ungrateful, I know. It's just that now, I'm more responsible for house, shopping, cooking, Evalyn, taking care of myself, driving myself to numerous doctors appointments, yet, my state of recovery, well I'm still recovering and will be for a while. I'm still not suppose to clean, such as vaccum, dust, or give into my urge to get out a saw and make my own dang potting shed. Mildly annoying things. I'm still not suppose to deal with poop, but I have no choice about that, I just have to be careful. That includes dog poop. But hey when there is a big pile in front of ya, are ya just going to let it sit there for someone to step in? Nope. Don't forget, I'm still trying to work as much as I can and that is very difficult. I work at night, when I can get a sitter, weekends, and sometimes at 3am. I get stressed out  I'm probably over reacting and know that if we obey God and trust him we will be on the right path. No one said this would be easy, this life thing. 
              We are trying to implement some good habits such as exercise, date nights, saving for another car, continuing to pray and do devotions together, etc. Jonathan has a gym membership now and we are trying to figure out when he is going to go now that he is working. I'm trying to keep going to the free cancer recovery yoga at the hospital on Thursdays because it really makes me feel a lot better. It's work out yoga. We are focusing on our joints right now and I can tell that it is helping with the pain. I'm hopefully going to start a dance class on Monday nights, theater and broadway dance, and would love to be in a local musical one day. I've also been thinking more about Evalyn being around more children since my immune systems is stronger and hers is also. I still have to be very careful though, so I have to talk to the doctor about going to big play groups. We have two new people in our small group who have offered to watch her while I work sometimes and they have two girls, so that may be a good option. 
            Today is my father in laws birthday. Frank has done so much to help us with cars, remolding our home, repairing things around the house, etc. Without him, we would not have a the much needed fence, the new and wonder kitchen, lights around the house, and so much more. Frank, thank you for all that you do and have done. We love you and hope that you have a happy Happy Birthday!!! 

1 comment:

  1. You do need to be careful Heather, now is not the time to run with scissors. You have come so far but day +100 is just one hurtle. SLow and steady wins the race. Jonathan's job is a blessing and you will find this new normal. Please remember this is about you, keep yourself safe, some things you will have to adjust but keep those risks minimal.Praying for you always and yes God will light your path each step of the way.

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