WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Sunday, August 28, 2011

Medical Update 8/28/11

                   


                   I had three appointments last week and all seemed to go well. My OB is working with a reproductive specialist in Atlanta on my case since going through menopause at the age of 31 is not normal and won't be treated the same as someone older than me. Right now, I'm off of all hormones, and we will be doing a blood test soon that will let us know exactly what type of replacement hormones I need. We are waiting to see if my insurance will pay for it, but it is such an exact test that we'd rather come up with the money if we can so we don't have to guess and then change the meds, then guess... etc. I've been extremely tired lately and they are not sure if it is because of the lack of hormones or that new medication I started, probably a mix of both. Plus, I've probably been pushing myself a little hard trying to meet my standards of what a mother and house wife should be able to get done in a day, while still trying to make time for myself, and create small jobs on the side.... whew...  It seems by Sat or Sun I just crash and sleep most of the day. Anyway, my doctor feels that once I have that test and start the medication I should feel better all around. I'm a Guinea pig with all this so I'm sure it will be interesting at least. I hope to carry another child one day and found out that there is some financial assistance for people that need assistance after cancer. If I decided that it's best for me not to carry a child due to my health, then we may consider a surrogate, hopefully a family member would volunteer. I'd had always hoped to do that for someone else one day. I think it is so sweet.
               The medications are still making feel like crap. I get sick to my stomach often and sometimes don't eat very much (I think it evens out). I can tell when I take the exjade at night, about 30 min later my vision is a little blurred, tummy is icky, and I just feel weird. I've also had a lot of trouble sleeping and still wake up with night sweats or freezing. My doctor wants to do a sleep study on me after I'm off the steroids. He said that the it's interesting the amount of dreaming that I do, how much of them I remember, yet I wake up so often and don't sleep a lot. Boy, when they drive into this brain there is no telling what they are going to find. Maybe they will find out that I use 11% instead of 10% of my brain.  I found out my thyroid levels were a little low and and we are going to keep an eye on it. This runs in my family and it bothers me that there is not a way, or that they know of, to prevent thyroid issues. The radiation increase the chances, which is why it is happening earlier. Please pray for God's hand in all of this. I believe that if he can cure me of cancer he can cure me of the the other things as well. If not, pray that God continues to give the the grace to deal with these types of things while seeking him on a daily basis. Not your will but mine Lord. Sometimes without the thorn in your side, you might forget to seek him, aye? Or not seek out and help others.  That is why I keep reading the verse I have up right, over and over.

1 comment:

  1. I used to think I wanted to be a surrogate but now that I have been through a pregnancy and childbirth, I don't know if I could emotionally handle something like that. It is a wonderful selfless act.

    That thing about us only using 10% of our brains is crap anyway. :)

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