We will start will Medical Updates. My appointment at Emory went great. Of course hearing that everything I'm feeling and going through is completly normal at this stage- feeling fat and tired, is comforting at a certain point, there is really not much they can do about it. They reduced one of my medications, the anti rejection med, to every other day. I think it's the one giving me curly arm hair. Gross. In one week, I start the oral chemo again, not excited. At this point, they say that I will be on that medication for the rest of my life, that research shows BMT's are more successful to be on the oral chemo after the transplant to reduce the risk of relapse. I'm still very tired and have had a lot of swelling in my ankles again. Sleeping isn't going so well and when I am sleeping, I'm snoring and having crazy dreams. I yelled out "Hurry" the other day, Jonathan said. Wonder what that was about.
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| Our friend Peggy, we will miss you! |
Mental Health wise, there has been some depression due to the passing of dear friend and neighbor, Peggy. She already had some underlining health issues but what made her sick this last time was a virus that effects mostly infants, the elderly, and immune surpressant people. I'm not even sure if I can go to the funeral. Then, my friend that had her BMT shortly after me and has not been able to speak for a few months, found out the she has leukemia cells in her lymnodes in her neck and will start chemo again the 26th of this month. They are not sure if it related to the transplant or something else. She is also getting a port put in and only recently got her PICC line out. Grrrr..... She has such a positive attituede. Please keep her in your prayers. Then of course, there is the flu and cold season coming up and with things mentioned above happening, I'm feeling a little parinoid, or maybe it's smart to feel that way. I think I let my guard down a lot because I'm doing so well, but man, if someone sneezes on me, I might freak out. I'm seriously afraid that if I had to spend a segnificant time in the hospital again, I don'tk know if my psych would stay intake again. Just the thought of being in isolation like that makes my heart race. Heck, I don't even have to think about it, I can just hear some hospital equimpment. Jonathan seems to be over what ever he had and Evalyn's gums seem to be feeling a lot better now. That teething is some rough stuff.
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| Her newest dance move! |
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| 14 months old! |
Evalyn met my brother, Scott for the first time on Friday, and he was so sweet to her. He is glad to be an uncle and even shared some of his chocolate pancakes with her, which she enjoyed very much. Scott has VIP status at this I HOP and even ordered one "to go" for Evalyn to eat later. For those of you who do not know, Scott has a developmental disability and needs some help in certain areas but has incrediable dance moves, likes Michael Jackson, and is very crafty. He will be at the Be the Match run/walk with me next week! Speaking of... if you still want to sign up better hurry or donate to my team! The money goes to helping with donor drives and helping families financially during the transplant process. We also met Emma Claire, my ex husbands newest addition. She is so sweet and pretty!
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| Scott and Evalyn share the love of chocolate pancakes. |
Between Scott's meeting and going back to my aunts house where my cousin Amanda was graciously watching Evalyn for most of the day and evening, I decide to try my hand again at dress shopping. This is one thing I learned on Monday at the mall: If you have gained weight think of the biggest size you could be and go up one... that way you can go down a size because going up is just more depressing. So I purchased 3 dresses at Ross, size 12, and they look good on me. Then I had something to wear to the Be the Match Tribute and will have some nice dresses for the Council meeting in November. I went to the thift store to try and find some jeans but buying used jeans ususual doesn't work for me, so I ordered some online that I know fit me right. Next on the list are some comfortable shoes that grow with swollen feet for winter, some thin large sweaters, and new undergarments. With my successful dress shopping trip, I went back to my aunts house and Evalyn I took a very much needed nap, we got up at 4:30 am that day!! She also turned 14 months old today and was very proud of her outfit that she had on, and her shoes of course.
The Be the Match Tribute was so nice and was located at beautiful Agnes Scott University. It was probably the most "fancy" thing I have ever been too, where people were able to bid 1,000 of dollars on items to raise funds. The food was great, the wine was yummy, the company very interesting, and the decorations were beautiful. We were able to sit at a table with 3 donors and their dates/company. One guy has been called 7 times and has donated 3 times!! It was great to hear about the other side of "donoring" and just how grateful they were to be able to help. One bummer was finding out that I have to wait two years before I can meet my donor since it was an international donor. I was able to meet patients that are 10 years out from their transplant!! I was definitively the "youngest" transplant person there, meaning only 6 months out. We were able to meet the CEO, Vice President, and other people that will also be at the Council meeting in MN in Nov. Finn, 5 years old, was able to meet his donor for the first time. There was not a dry eye in the place. Jonathan was so handsome in his new suit and I was looking fine in my new dress and short hair. I was able to raise my "paddle" once during the auction before Jonathan took it away from me. I also found out I will be on the Taylor Made Sports show tonight at 8:40 pm. Not sure the station yet.
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| Gracious donors for out table. |
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| Jessica, right, donated to someone in Germany! |
Sunday, I finally made myself, and everyone else get out side for a walk. It did make me feel better but I think I gained weight in muscle and lost no fat. GA is happy since UGA and the Falcons won, I mean let's talk about what is important here. My fantasy football team is doing great, I might win this year, just kidding guys, my husband's is doing well. Sunday night I had the thought of doing something productive like work on the baby work or something but instead I watch a movie by myself called Secretariant, a true story about the greatest race horse ever. It was a great movie. In conclusion of this crazy week and weekend, I've decided I want to go to a horse race. So there you have it.
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