WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Wednesday, September 14, 2011
What They Don't Tell You
They don't tell you all the wonderful people that you will meet, generosity shown, the people that go out of there way to help, the compassion that you feel, and the new doors that will open.
They don't tell you that after you get revved up on steroids and start 20 projects, that you will then lose all that energy and not be able to finish them leaving your house and porch a mess and a deep sense of failure.
They don't tell you that taking care of your wonderful child, the house, and trying to have dinner ready may be harder than actually going to a job and returning home.
They defaniny don't tell you that treatment and recovery is worse then the disease.
They don't tell you that you just won't be able to remember things sometimes, for no apparent reason, and there isn't any funding to really do a lot of research on "chemo brain".
They don't tell you that you may start to not care about things that you once did because you don't have the energy to care but you have just enough to be a little depressed about it.
They don't tell you there is a good chance you may have some post traumatic stress due to being in the hospital so much that when you hear the hospital beeps in the back ground of a phone call it triggers an increase in your pulse rate and if you liked watching hospital shows, well you can forget that now.
They don't tell you that people have very good intentions on doing what they say they will do when your treatment starts, but by no fault of there own, have to deal with their own issues, thus not doing what they said they will do.
They don't tell you that you learn a lot about who and what you judged people for, such as not having the energy to exercise even though you know it would make you feel better in the long run. Ha, running.
They don't tell you that if anything goes wrong they are going to up the steriods again and the process may start all over again.
It's a good thing they don't tell you everything, otherwise we might not have been so hopeful.
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Oh Heather, this brought tears to my eyes. I have lived with all of that!! And the post traumatic stress...yes!! And they definitely don't tell you that. Thank you for expressing it so well. I pray renewed strength and courage for you! Give yourself a lot of grace. Bless your sweet heart :)
ReplyDeleteDeb
Thanks Deb... I thought of 5 more today :) good and bad and your welcome!
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