WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Saturday, October 29, 2011

Medical update 10/28/11

                  It’s been a rough go the last few weeks. Between the 2 weeks in the hospital, 4 days of stomach issues, 3 days of Emory, by the time I had a sitter to go to yoga on Thursday, I  just came back and slept at the house for 3 hours. Yes, somehow I made it to and from Emory this week 3 times without getting admitted. Thanks so much to everyone who gave me rides and came with me.  I think he just wanted to actually lay eye balls on me since I was so sick. Right now, there are 5 oral chemo pills for CML, AML, ALL. 3 have been all approved and won’t work for me because I’m a freak. The 4th one I could get pretty easy because it has already been approved by the FDA but Dr. Khoury wanted me to try the 5th one that is in clinical trials because I can always go back and try the 4th one.  When, When, When do I start is it question….. I don’t know people. Unfortunately, I have no control over anything.  I have to take like 20 tests and show that my blast crisis ( WBC’s not working right), with two not one Bone marrow biopsies, are below a certain point.  I actually want them do an LP to make sure that it has not gone anywhere near my brain. That’s all I need is a brain tumor. I’m going to Europe and running up a credit card if that happens.
                     Great News! My friend Danielle seems to be doing better. She was actually able to speak when I saw her at Emory on Friday. We didn’t get to catch up very much but maybe I can talk to her on the phone tomorrow! Also, it was really cool that two of my readers recognized me and said they like the blog. Thanks so much Dan and Charmaine for your comments and encouragement.  Thanks to the amazing employees…. Selena, Joy, Harold, Jason,  Ramirez , and the list goes on and on.

Go Dawgs! Video of Evalyn. 

Here is a video of Reggie singing me a song when I was in the hospital. Thank you.


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