Fun? I'm sure that is very true, but it also floes when your drugged up or just sleep all day. I didn't even get my computer out at the hospital. I was in a weired state of " just let me sleep or die". They did every test in the world and could not figure our what caused the fevers. They know what I don't have. I'm still really bummed that I have that mutation, I'm mean I already had 2, the last one is the the bummer. I'm trying to keep my chin up, just going though the stages again I guess. One thing is for sure is God has allow people far and wide to continue to bless. Evalyn will not run naked, my head will not be cold, Jonathan will not die of low loses of gummie bears. :)
I'm missing small group tonight and probably yoga this week, I want to try and start back on thing next week, but getting down the hallway without wanting to go back to sleep. Sleeping with Wallace.......well it's heaven. Sleeping on my temperpedic with Wallace... I could tell you because it would cause you to sin with envy. Soon I hope to have enough energy to blog more and do more of everything. I've lost my charger to my phone for the moment and about 6 more things. I would say that I feel about 70 today. I compared my systems to my poppa when he came by so we decided to up it to 80 years old.
Keep Jonathan in your prayers, he has such a tremendous weight on him and he is doing a great job. I love you hubby!
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
It's great to 'click' into your blog and it's you doing the writing...not that I didn't like Jonathan blogging...
ReplyDeleteYou are in my prayers and thoughts.
love to you.
Just 30 more percent to go!!! Keep that positive spirit my sister! The same God that healed you before WILL heal you again! Stay in faith and don't be ashamed of too much sleep.....the body heals better while we sleep :-) Adrienne
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