down down down the steroid ladder

              I just wanted to let everyone know that I’m still kicking. Friday my labs were ok so I didn’t have to stay and was able to ride back with my mom to Cartersville where me, Evalyn, and Wallace spent the weekend. Jonathan got a weekend off and went to the game, it's his birthday week! He will be 32 tomorrow! I was, and am, pretty tired and weak due the such a fast decrease in the prednisone (at 20mg right now!) and didn’t get on the computer or hardly talk on the phone the whole weekend. My parents are going to have to get an elevator with all those stairs.  I was able to spend some time with my mom, dad, and sister. We were missing Daniel though. Jennifer took me by a little antique store that I really like and of course I found the perfect end table for my guest bedroom and or course it was too much and I even haggled with them with my mask on and managed 5 dollars off. Blah  Evalyn had so much fun playing and dancing at my parents house. She likes football games, which is fine, when she is a little older I’m sending her with her daddy and I will have Sat to myself. She is super cute in that bulldog outfit and will get very upset if you try to take it off.

             Medical stuff…. Well…. Lets just say my life is being held in the balance…. Kinda feels like God just has me dangling by a few fingers and not covered in his hand. Woooo, isn’t this fun? Surprises at every  corner…. Come get your popcorn. Yes… I am crazy.  I still have a lot of hoops to jump, who am I kidding, a lot of hoops to crawl through to get on this clinical trail. My LP came back negative, meaning  the cancer has not spread to my spine, praise the lord, thank you for all your prayers. Next step is getting off these steroids without having Graft verses host disease (stomach issues and rashes are what I have had before)… that’s enough to pray about for now. Otherwise, I'm just very very tired and not sure how I'm going to make it through this week. I told Jonathan I needed a maid, a gardener, a secretary, a sitter, and a personal driver. What are you doing at 5 am on Friday.... feel like going to Emory? Rides and sitters needed!