WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Sunday, December 25, 2011

Christmas update

      Well we forgot to write on the blog that I had to go into the hospital Friday for fever and such.... and I'm back on steriods for the moment. Luckily, and with lots of prayers, I was released on Christmas Eve. Our family is not together yet, because Michael and the girls have Chloe dog, but I know she is having a good time. I'm feeling a lot better, but they never figured out what was wrong... they think I might have had a reaction.... to something. Nuf bout that. Except I lost 4 lbs this week... just to find out today that I weigh the same as my 6'2" brother.
         Evalyn was in awe this morning and just pointed at her Santa presents, then wanted all the plastic off each one so she could play with her tutu's, teapot set, and wooden food. I didn't see her leap for the kid broom, but she does so a knack for picking up lint and putting it in the trash. Daneil got a workout machine, Dad got his second pair of Coca Cola pj's, I got an awesome sisters ring that made me cry, Jen got a kick ass earring holder from yours truly, Jonathan got beer mugs, dogs got bones and toys and Mom got just what she wanted.... all of us together. We caught Evalyn kissing Santa Claus.







Thank you so much for your prayers.

Love, Heather
        
      
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1 comment:

  1. AnonymousDecember 26, 2011 at 12:50 PM

    Nice post Heather, beautiful family pics. Remember the weight gain is clearly from the steroids, it'll drop as the steroid use does. Merry Christmas and Happy healthier new year.

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