Hey. This is Jonathan. Heather is in bed, so I am writing for her.
I took Heather to Emory for a few hours yesterday. She had a fever, is in some decent pain, and has been coughing for days. She called the nurse/dr hotline, and they wanted her to come in... so I came home from work and took her down there to be checked out. (Thank you Bruce and Faye for watching our little gal).
Well, Dr. Khoury saw her and then sent her downstairs for a few hours of IV antibiotics. He also prescribed her a new med (an antibiotic too, I think... but honestly, I could totally be wrong... what do I know, I'm just the Kroger Pharmacy frequent shopper).
I am writing because I want to ask all of you out there to pray. Something like Bronchitis or Pneumonia could be fatal to my bride.... so please pray that whatever is going on isn't something that bad... and that my favorite woman will not be in such pain. The Doc must think its not too serious or he wouldn't have let us come home... but crazier things have happened... so please pray. And if you're not the praying type, we'll take cash instead. Just kidding... well, kinda...
Adios, and thanks for reading. And for praying.
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Jonathan - I bumped into you and Heather at Emory a couple of months ago for my regular check-up with Dr. Khoury (I am a CML chronic phase patient). I think about you all so often right now and will pray hard for Heather to recover soon. I am thankful to read that she now has access to ponatinib, which is a very promising therapy for the various CML mutations. If this post is linked to my Google profile, then please drop me an email, so I can figure out a way to send a Christmas gift your way.....
ReplyDeleteDan, Its not linked. You can email me at jonathan_cape@yahoo.com
ReplyDeletePrayers headed your way! Hope she feels better for Christmas :)
ReplyDelete