WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Sunday, February 26, 2012
Really good movies
I seen some really good movies lately, especially ones that are not sexually crude or possessed with demons., which I don't watch. One of them was "Midnight in Paris", I love the time period change in the movie because I adore vintage clothing, hair, music, makeup style and the simplicity of old times. Jonathan found an i tunes gift card and I think I'm going to get the soundtrack, it's so relaxing. I think I already said that I went to see the "Artist", it was amazing too. Very different since it was silent, downloaded that soundtrack quick. If you can see it in the theatre because it seems it would be too hard to talk through. Another movie, is an old one from the 50's, "Monkey business", when you see the cover you think that that it's mainly a Marilyn Monroe movie but she is not a main character to say the least, but beautiful none the less. The couple in the movie are Carey Grant and Ginger Rodgers. They are inventing a "youth serum" and end up doing all kinds of silly things. It is the funniest black and white to me since I saw "Some like it Hot"... Jack Lemmon in that movie is so young but still has the same mannerisms. Another movie was "Exceptional Loud and incredible close". It is sad due to it being about a kid that loses his father in 911, but the movie so well made. The star, a 9th grader, is the most amazing child actor, Thomas Horn, I have seem in a long long time, I think he should be up for an oscer for sure. He had no experience and had just won the kids jeopardy and the producer asked him to try out. Tom Hanks and Sandra Bullock are also in the movie and great. The other movie the Hippie in me likes, is "Pirate Radio" it has some sex, drugs, and rock and roll in it, but nothing crude like today's movies. The music is great, an there are some really funny parts. I glad our government can't take my music from me I like too many different kinds!! So yea, we have been trying to see all the movies up for Best Picture but didn't quite make it. We watched "The Descendants" tonight, yes, I cried. Don't want to spoil it for you so I'll just say I really liked it, it had some really funny parts too it and reminds me precious each day is... plus it's set in Hawaii.... and if Dr. K would let me get on a plane, I might would go tomorrow. Well, a couple weeks at least. Heard Christopher Plummer won something and is now the oldest person ever to when an Academy Award. It took me a while to realize that he was the same person in sound of music.
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