Forgot my guitar, had to sing alone.... for Barbara!
Thank you so much for all of your prayers this week. The bone pain has not been as bad as last week or I'm just getting tougher. Either way, I have been able to make dinner, get up two days in a row before Evalyn, wash clothes, caught someone when they fell (which was kinda cool since I'm the one people seem to keep catching) exercise, play with Evalyn, cleaned up Evalyn after an apparent water fight, visited with grandparents, and get organized with dates, and kinda cleaned the bathroom. Oh it's only Tues, not doing too bad. My sense of time/dates is whack.The list of things I have wanted to get done and either can't do or just didn't get to is a lot longer. I'm able to let it go now. Sometimes you make plans and they just don't work out, but that doesn't mean you don't plan anything.... I also received a special card from some of my former clients and their “momma”, it was so special. Makes me think about working again, but I know that taking care of me and Evalyn and sometimes my hubby is all i can do right now. As soon as I’m not at Emory every week, I really want take Evalyn and us go see some of my “peeps”. For those that do not know, my former job for almost 5 years was a support coordinator for a wonderful company named Creative Consulting. I was responsible for monitoring services given by the state to adults with developmental disabilities. I miss it so much, I miss my people. Creative Consulting was there to let me continue to work from home as long as possible and Jonathan was able to graduate school. They continue to be a support to me by visiting, collecting money, checking on me, and just loving me. I don’t know what will come of my “employment” opportunities but like to think they would always have me back. I think about going back to school and doing something with Behavior Analsis to be able to write behavior support plans…. Or maybe I will write a book, or maybe by some miracle I can have another child and just get in with a home school group and renew my teaching lincence. The possibilities are endless. Right now, just try to sell some stuff on ebay, got some bids right now! Another possibilies I like to think about is having my own booth at a store to sell my art, vintage clothing I find, and antiques I find. I also love photography and could make cards and such. I want to learn to sew but for some reason I just can’t read that book, I need personal lessons. I also love to play the guitar and sing and would love to do birthday parties and other events. Goodness.
I go to Emory again tomorrow and I have still not been able to get the medication that I need for the CMV virus. Please pray that the levels are low and I don't have to stay. My skin is maybe half better but still has a ways to go. I had to put olive oil on my scalp today like I have cradle cap or something. Evalyn saw my legs for the first time yesterday and had some lotion on her hands and she rubbed some on me, she is such a sweetie. My eyes are a big issue right now with my 3 part regime 2x a day. They are really watering today, can't hardly see. They are all red and ugly. My bottom lashes fell out again.
My Granny and I had a nice talk again and she mentioned about planning a trip to Jekyll island because she has not been there is so long and if she is going to be old and sick she might as well do what she wants. I told her I know exactly how she feels and that Jonathan and I would drive. Granny said she would just throw a rag in a suitcase, we'd leave, and get what we needed there. Gosh I love her. Apparently my Dad caught a pretty big fish there one day. We are going to plan it for real. Now, now, don't anyone get uppity, I'd take this lady anywhere she wants to go. A cancer patient, a toddler, probably a dog named Wallace, and two very independent people in their 80's sounds like a great plan. Oh, then there is Jonathan, he's the most normal and will be in control of everything important. Other are invited of course but you might have to take on some responsibilities such as making sure I take my medication and wiping Evalyn's butt. So we are going to plan and hope for the best. The BEST will be seeing and smelling the beach and seeing her happy to be there. Today the 3 of us just laid in the best together and took a cat nap. Best use of my time today.
Meeting Barbara at her two year BMT party. She has been a good support and inspiration for me. |
Evalyn had a blast! |
All dressed up for the party! |
At the library, she kept waving and getting a little closer, Then she finally gave her high five. |
Finger painting...She didn't like her hands being dirty. |
Pic I found of my Dad and her at the park a few weeks ago. |
Oh Thin Mints, how I love you. I'm going to have to stock up on them.
Ezekiel 34:11-15
New International Version (NIV)
11 “‘For this is what the Sovereign LORD says: I myself will search for my sheep and look after them. 12 As a shepherd looks after his scattered flock when he is with them, so will I look after my sheep. I will rescue them from all the places where they were scattered on a day of clouds and darkness. 13 I will bring them out from the nations and gather them from the countries, and I will bring them into their own land. I will pasture them on the mountains of Israel, in the ravines and in all the settlements in the land. 14 I will tend them in a good pasture, and the mountain heights of Israel will be their grazing land. There they will lie down in good grazing land, and there they will feed in a rich pasture on the mountains of Israel. 15 I myself will tend my sheep and have them lie down, declares the Sovereign LORD.
Testing
ReplyDeleteHad a great time with Evalyn tonight! She is such a happy child and you have done a great job raising her despite all you have been going through. I pray God allows you to dance at her wedding,love you and thanks for showing this computer illiterate how to post comments! Love and prayers, Grandma Judy
ReplyDeleteHeather, i have just found ur blog... through Facebook. i think it takes alot of courage to post ur life on a blog. i will keep reading. when all this started. i signed up to be a match. i hoping i could help someone....
ReplyDeleteyou have a very beautiful family.
have a great day.... i will continue to follow.
I love to hear that people have signed up. We find out soon if my family member is a match for someone in CA! So exciting.
ReplyDelete