WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Sunday, March 4, 2012

Daily Devotional 3/4- The doubts





http://www.dailyfastfuel.com/2012/02/drive-dark-of-doubt-away.html

I've been looking at this devotional online for a week now and really like it. This one goes right with what I was talking about yesterday. So I won't rehash that. I think today, I'm a little down due to the coming off some the steroids and not having as much energy as I have, so I'm just sitting here, thinking about what I need to be doing. I didn't drive much into my devotional this morning because I was chemo brained into looking a some boots that I feel like I need, because well, I don't have any I can wear.... they are all high hill, and I just can't do it anymore. And my cuz gets a discount. And my feet get cold. I have garden boots, but can't really wear those out..... excuses, excuses, then I started going through pictures of yesterday because it was so much fun and I wanted to see them, then started commenting on people's posts on facebook. Given, I did wake up at like 3 pm this morning and the extra pump of steroids from yesterday is still pumping, but only in my brain and fingers. Then I started working on my ebay sells and I think I feel asleep in the recliner. Geez, sorry Lord. I did praise the Lord for this awesome eclectic blanket that helped the bone plain. Got to get a bath, give Evalyn a bath, go to gym, set up sitters, take a nap, ha ha, cook dinner wash never ending clothes, go through her clothes for some consignment money this week, finish a painting, somehow..... but we all know not everything on list happens, just like this was suppose to be on the list for 7 am. Thank goodness her understands my lack of ability to concentrate like a dog- BALL!  Maybe that's why all dogs go to heaven.... except God doesn't tell us we are like dogs, he tells us we are sheep which are a lot dumber than dogs. Shoot.


“Joyful, joyful, we adore Thee, 
God of glory, Lord of love;
Hearts unfold like flowers before Thee, 
opening to the sun above.
Melt the clouds of sin and sadness; 
drive the dark of doubt away;

Giver of immortal gladness, 
fill us with the light of day!
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2 comments:

  1. AnonymousMarch 4, 2012 at 7:07 PM

    So happy you are doing more,you inspire me.

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  2. HeatherMarch 4, 2012 at 10:04 PM

    I'm afraid of this steroid crash.... it's starting today and I might be too tired to do anything... thinking about just staying up all night. Hope you all are well, we will be at story time at 10 on Tuesday!

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