WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, March 5, 2012

Daily Devotional 3/5

           I'm in the art of tricking myself to do things. I'm up! I'm having trouble fitting in my daily eye routine so I decided to do one of them in the morning. That made me set still long enough to at least pray for a few minutes even though my mind wonders so much, it was probably like a minute. Another way I trick myself if making sure I have sitters for my free exercise classes, then I don't have an excuse not to go... or sometimes I'll give up totally and can't drive or something and just go down to my Grandparents house and eat their food and drink their coffee. I try to make up for it with my witty comedy, sad leftovers, and waiting on them when their stubborn selves will let me, and buying stuff they need and being sneaky not to let them pay me back. I'm stubborn too, don't really like to ask for help. Off on a tangent again.
            So this morning, I read from one of my devotionals called Come Away My Beloved by Frances J. Roberts. I've mentioned this before, it is written just like the Creator of the universe is talking right to you. One of the qoutes said, " You cannot ignore my voice without experiencing pain, you cannot turn a deaf ear to my words without getting in the enemies snare".  Reminds me of when Evalyn fell off the porch. Ouch. Or last night, when she got into trouble and her Dad experienced "this hurts me more than it hurts you", for the first time. God really doesn't ask much of us. It also said that" We have not cried to him with all our hearts, but complain that God doesn't hear our prayers." I know that is the truth for me.... why now Lord, why this, why me, when, when, Are we there yet..... If a bird was flying at the same speed as us what time would they arrive, which is something my daughter Corynne asked when she was little trying not to get in trouble with her Dad in the car. 

Check out Hebrews 11:6- those that diligently seek him. and Jeremiah 29:13- with all your heart.

We try to seek so much with all out heart- money, family, status and diligently work to make sure that dinner is on the table, that we look good enough, that we find a job that gives us fulfillment. I have to continue to remind myself to seek first the kingdom of God and all these things will be added to me. For me, it's little sins that I know I need out of my life that can block the lines of communication.... well why would he give me something big to do if I can't even put my necklace away (another Evalyn reference). I'm not a baby in Christ anymore, or a tot, but I've still got a lot of seeking to do with ALL my heart. 


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