Not sure if I can get it together this morning. Got off my mojo plan in the middle of the night when I fell asleep, very well mind you, in the recliner. My plan was to acually go to bed and sleep through the night, or at least try to do so. My steriods have been reduced and I'm starting to crash..... I'm glad that my mom is getting Evalyn for a couple of days because the rest of this week I may just sleep. So I woke up at one with my back hurting... this recliner, although I'm thankful for it, is on its last lumbar support. Then I went to bed where my bladder decided not to cooperate for the rest of the night and I think I just got up at about 4:00 to the alluring call of my new heated blanket. As I read some verses this morning, nothing really jumped out at me.... but does it really have to?
I'm so thankful that I did not have bone pain last night. There is no reason I should not have.... it was scheduled you know. With the reduction of my regular steriods plus the double dose on Sat, and a few things I should not have done yesterday, and the history, well I kinda expected it. I still have a ways to go, so continue to pray for no bone pain. I can go without sleep, it's the sleep, pain, and taking care of a tot. Continued prayers needed for growth in Jonathan's job, health for us all, NO Fungal Pnuemonia, medical bills to stay down, sick and down family members, plans for the future such as a VACATION. A little 4 year old boy and his parents are waiting to see if my family member is a bone marrow match for him.
So my devotion this morning is to be devoted and thankful to the Lord for answering the prayers of many. Being grateful for people that write my name on their mirror and tell me their church is praying for us. To trust and know that God's plan is bigger than mine. To have peace that whether I'm healed here or in heaven, that I will be healed. To have wonderful support all around me from sitters, friends, yoga, family, physicians, and my dogs.
Please listen to this song on You tube..... It's called "you have redeemed my soul". It's one of mine and my Corynne's favorite.
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
No comments:
Post a Comment