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Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Thursday, March 8, 2012
Daily Devotional 3/8- The little things
My little girl is getting her first live vaccines this morning with my mom and then going to be gone for two days because I can't be around her due to the "shedding of the virus". It used to be 2 weeks. I cried this morning because I couldn't take her and comfort her, but Grandma is the next best thing. She was so happy to see her yesterday. I'm sure my mom is going to have a rough day with her getting shots and then having to drive so far back to her house. I'm really lucky to have such a great mom, in laws, family, and friends, in general. Couldn't sleep again last night, I don't really stress about it much anymore, I'm doing all I can. I get to pray more so that's a positive, of course I also get some attitude sometimes too. Like when Jonathan asked me to roll over because I was snoring and I told him I didn't want to. Sorry. I have a cough today... not good so pray for that to go away.
I'm reading out of Come Away my Beloved today. I love the verse: 2 Corinthians 4:8-9 We are hard pressed on every side, but not crushed; perplexed, but not in despair; 9persecuted, but not abandoned; struck down, but not destroyed. Do any of you remember that song "yes Lord" and that was the bridge of the song?
It also mentions 2nd Cor 4:2 and talks about our dealings with others. You know, there's the white lies, the withholding of information, little things that we just think are not so bad compared to others. Guilty. I'm going tomorrow to pay a chiropractor that didn't take debit cards at the time, and I saw him 5 years ago. He never sent me a bill and I kept forgetting. He'll probably be shocked. Well now that my back hurts again, I'm going back to the doc and that is what reminded me. Maybe that is why my back hurts. We also have a T shirt guy that we need to pay back that made us shirts when we found out we were pregnant. Not sure why we didn't pay him... guess cancer hit and we forgot. Excuses. We did finally pay the candy shop in Madison that didn't take cards and she just gave us the candy. Don't worry, I'm not afraid to get what I need back. I will go to Walmart in a heart beat for $2. Yesterday, I got $75 back for "mother's morning out" since Evalyn could only go once and I can't be around a lot of kids. Why so much about money? Well, it seems to me that is where people have the most issues. Of course there are the white lies.... see the video below... love this song.
http://www.tv.com/video/10404844/lie-to-me--lie-to-me--white-lie-song-from-12-14
God will bless us in the big things as we grow to be responsible for the little things.... like children... his children. He wants us to come to him with a clean heart, contrite spirit, and honesty. Does that mean we can ever be perfect.. well, not here at least. I want the Lord to do miracles in my life and not just my health, but with people around me, with the words I say, things that matter, the big and the little. Now when I go back to store today where I have to take something back and the lady was so unhelpful yesterday, I will try very hard to be nice and not talk to her manager.
God Bless!
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I remember that 'yes Lord' song. I think it was on an Audio Adreneline CD that I had. And the bonus track on that CD was hilarious- "the house plant song"! You should look that up if you have never heard it. :)
ReplyDeleteThat white lie song was great. Gives us all something to think about as we have all been guilty at times. Plan to play it for Kathryn as I think she will enjoy it. She is at play practice now and so glad she could drive herself there. She always text when she arrives some where and then again when she is leaving so I don't worry. She is a great kid dyspite her parents' problems,got all their good genes and they do have many. Alcohol and drugs mess up so many lives and all we can do is pray. You are doing a wonderful job raising Evalyn and I pray you will be around to see her grow up. Your attitude and faith are amazing which is half the battle. Our love and prayers are with you. Love, G'ma Judy and family
ReplyDeleteyea, I got to learn how to play that song.... Evalyn would not be such a wonderful child if it wasn't for all you in her life... she has so many Grandma's, Nanny's, friends, Poppas, aunts, uncles, cousins.... ya'll are raising her as much as I am. I want to be around too more than anything, but I have peace that if I'm not, she will be loved and grow up to be a sweet, smart, Christian girl. It's not really the problems you have... it's how you deal with them.
ReplyDeleteHeather, the picture of Evalyn is beautiful with the Easter lillies! Thank you for sharing your daily thoughts and devotionals! You are a blessing to so many lives that you touch through your writings!
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