Not sure why I woke up angry this morning. Maybe because I snore now since the transplant and I wake up in the middle of the night and my husband has had to leave me. Or maybe because I had a dream it was raining and my plans to take my neighbour Eva and Granny shopping and out to eat would be ruined. Or maybe, maybe, I was just hungry. Either way, I woke up at 5, and even got up and took a shower at 6:30am. Weird. My eyes are blood shot. I'm behind, even though I got up early, but for once I have on clothes, shoes, and makeup before Evalyn gets up.
I feel very confused at times, like I don't know what I'm doing, or putting milk in the cabinet more often than not. There are times that I'm not sure what day it is. I think that the Lord right now is helping me get more organized so that I can focus more on him. I live in a boat house, not really but it is like one, and we have to keep it organized. I'm making a command central with Evalyn's schedule, emergency numbers, an everything you need to know about Evalyn Rose, and things we are working on. We have done this before and it helps me not to be so anxious if something happens and I have 10 different people here. Does God care about my organization... I think he does... if it give me more time to spend with him instead of trying to find a matching shoe. That's what he wants, ME. I don't even have a verse today. Just a song I sang at my Nanny's funeral.... blessed assurance, Jesus is mine.....
I hope you have a wonderful day!
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Wednesday, March 7, 2012
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I love ya. Sorry to keep make you sleep alone. I wonder if they make temperpedic couches... that would be awesome.
ReplyDelete..."Perfect submission, all is at rest;
We in our Savior am happy and blessed..."
(I changed those words a little)
Again, babe, i love ya!!!