Medical update 3/15- Now I have to do what

Yesterday started to be a great day. Running around gettting ready, sitters coming that care, meds taken, stopped by my family's house to eat an awesome lunch, and it was a nice day. Saw a horrible wreck though, but thank goodness for the peach pass I got just for Emory days. I was almost free and clear yesterday at Emory. I was able to see the Dr. early, labs seemed be fine, rash is almost finished, and I don't have to see him for two weeks. Still the Lab rat in waiting to see what happens with the GVHD. Is it the GVHD or the oral chemo.... no body knows. So now we are reducing the steriods to see if it comes back, great. If it does than it is the GVHD for sure and I will start back on the oral chemo.  If it doesn't I will start back on the oral chemo and then see if the rash comes back. "Dr. K, so it doesn't matter if the oral chemo causes the rash, I still have to take it and deal with it right". He said "I don't know" like there may be other ideas.. maybe the next drug coming out. I didn't push it, I had dinner to pick up from a cousin and wanted to get home to rest before church so I could acually pay attention. We discussed the coconut water the chiropractor recommended and that the flax seed seems to be helping. We discussed BM's and that I may have some GVHD in my tummy. Don't be down wind from me, I'm serious.

I saw the social worker that may be able to provide some more assistance. I told her we were having a little rough time because we make just a little too much to get any help but not enough to get ahead. She is suppose to send me some paper work today. This month so far we have already spent 350 dollars in meds, not including the ones I still need or the co pays for the doc, or the Cobra insurance and Evalyn and Jonathan's benefits. Gosh I hope my dogs don't need anything else. On top of that we need a new roof... it's bad, real bad, mold growing in there, rotten bad. I need a job. After this hump, I gotta figure something out. I have some kind of weird aura that breaks electronics. Between that, the solar flares, and steroids... my phone, camera, laptop, Ipod, bluetooth, you name it, has had issues this week. I told Jonathan I wasn't even going to get near the T.V.

So as I was walking out of the room, they stopped me and said there was something else. Oh know, I didn't bring my laptop in, I've jinxed myself, I'm going in.....     Nope, they sent me home but my blood sugar was 400, they are pretty sure that it is the side effects of the steroids. He said to go straight to the pharmacy to get all my supplies. There was no in-service. Just two hungry frustrated people trying to figure out how to get enough blood to read and get me some insulin, 4 times a day! Jonathan left work early to go pick it up and when we got home we spent forever trying to get it right. I had to prick myself a least 6 times, the machine was being dumb.  The directions are so small, I can't read them and Jonathan's not here this morning to help make sure I do it right. Where am I going to put this in my regimine during the day? I already feel like a freak with my mask on all the time, now I'm going to whip out some needles and blood?  Panic attack.  Breath.  After that, I went and hide under my warm electric blanket while Evalyn watched Kipper. Couldn't sleep well, I guess just being nervous. Today sometime, I have to make myself a schedule or something, then I'm sharing with the world so that others my know what to expect.

There are a lot of exciting things going on too that I want to share about plans and Evalyn, but I'll save that for the next blog. Right now, I need to find a telescope to reread some directions and do this before Evalyn gets up. Obviously, no devotional this morning. I'm sticking with the gummy bear effect right now.