Medical update 4/26-Been there done that.

Hello,
Been a long time since I have written. I'm not even unpacked from the trip, had company, and have had some extra issues on top of that.... so blogging was last on the list. I am honestly so overwhelmed with the amount of self care tasks that I have each day that I'm messing up. Not bad, just forgetting to do stuff here and there. I need help. I don't like saying that. I need someone to just sit down with me and help me write out everything I need to do each day in an organized simple way, because doing it alone is so, well, so overwhelming. It's like if I see it on paper, I might freak out. We are dealing with the facts, without much information, that Jonathan is going to get laid off. My uncle Frank is in the hospital, at Emory, on the BMT floor, and my heart hurts so bad because I know what that first week is like and I know what is to come. I had a good care package for him, because I know what you need even if you don't.... a small trash can, scissors, good toilet paper, plates, napkins, spoons and forks, snacks, reading material, a notebook to stay organized, calendar, your own name labels expo marker, aquaphor for your lips, muscle pain reliever cream, flush-able wipes, moving all the the nursing stuff to one place ( they had taken over his room), a fake flower :), some games, pens, dry mouth spray, a night light, slippers just for the hospital, and a few more needed items. Uncles trying to pay me for them.... yea right... after all the money he has ever given me and he has always treated me like his blood relative.

 I can't wait to tell you about our trip, visit with friend Josh, and our awesome play date and to an show you some new pics and videos. That will be coming soon.

Since a week or more ago I've had terrible sweellingin my feet despte that I do stop and put them up and wear these freaking compression hose almost day and night. The doc gave me some medication for 3 days to see if we could get some of the fluid off me, hello my favorite seat, the old pink john. I took it this morning so hopefully I won't have to spend the night in the duck bathroom. They reduced the steroids again, maybe that's why I'm so tired today, except for the fact I went 90 to nothing all day yesterday and even made it to small group. Then they upped an immune suppressant hoping to help with the joint pain I have been having. On my Lord.... I can take IBUROFEN  now!!!!! I almost did a jig in the office.

Then on my way out, I danced and sang a new song I learned this weekend for a group of patients getting who knows what into their body... "God Dance the day you were born."  I'll make a video for you  ;) As Evalyn would say..... it's fun.

Sending the most awesome pics soon!
Heather