Nov. 12th MJ, Talk to me people, Cool Gifts!

MEDICAL MJ.... that's medical mumbo jumbo.... for those of you that thought it was MJ for Michael Jackson,well, that's fine, I still love him even if he died on my birthday.   Thank God I'm in my right mind and can ask advocate for myself. Oh my peeps..... I miss advocating for you.  Ok.... so we are still having some communication issues here.... and I'm trying not to pitch a fit. I have already expressed my anger is some words that my mother doesn't like to hear me say. Better not, they might try to give me something for it.  I thought I had taken care of this yesterday when I talked to my doc, fellow, and the nurse. They all apologized for giving me incorrect information and that would indeed start the chemo on Sat and be jacked up on steroids for 4 days. Yesterday, I sat down with my nurse and we went over my orders for the next week. It is important to me to know what is going to happen each day, to a certain extent, mainly because if someone is driving 2 hours to see me I don't want to be laying flat on my back for an hour after a spinal tap. Makes sense to me. I thought it made sense to them yesterday. I am ok with last minute changes if they are needed for my health care. If my labs come back in the am and I have to get 10 bags of blood, I'm not going to be upset if I had planned to go on a walk. Well..... last night around 7pm.... my Mable (nice nurse).... came and said " We have your platelets ordered for your lumbar puncture tomorrow afternoon." WHHHHAAATTTT? So, I realize that if I take my right hand and put it over the right side of my face, and talk like that.... Heather is getting angry ( I love that Seinfield)   She was super nice and paged both doctors since everyone was not on the same page. She heard back that I indeed was getting the chemo in the spine again..... OK cool.... I can handle that. 
            So all in all the LB is a piece of cake and it was so fast today because the Dr. did it first and I was not practiced on by a fellow.... fine by me because my sweetie came to see me today and I have not seen him since Sunday and Sunday I was really hurting. We went to see the little gardens at the clinic. I of course had to wear my mask...... I drew a smiley face on the mask with a marker. I got a lot of smiles back. Some doctor drew me a silly picture of a balloon stand that said 25 cents and gave it to me while I was waiting on by CT. Yep.... got a CT today.... just because of a little sinus pressure. Good thing I did because the 2 transport people and my CT person had never heard of be the match and how easy it is to sign up. They all said they would look it up tonight. I played around in my wheelchair for a little while.... I don't need one.... but they get someone to take to in one for any tests.  I was doing circles and working on my moves because I was the only person in the waiting area. The tech came out and asked if I needed anything. "Nope... just playing with the chair."  " ok " she said. 
   **Visits**      My cuz Andy and aunt Lisa came for a visit today. We had a little picnic in the room with some cheese, apples, and carrots. My aunt Lisa bought me the prettiest dress ever!!! It is so me! Andy went to the trouble to find me a nice sleep mask so when I'm really sensitive to light I can wear that instead of wrapping my head up like a turbine. As I said, Jonathan came to visit today. He brought me a Locos burger.... yummy. He also brought some more stuff from home such as my color pencils, paper, clothes, the digital frame, the baby book, and the camera. I officially have all the good electronics. I don't feel too bad about it. We briefly saw my uncle Teddy today. He comes to the clinic for treatment also, we may be here on the same days. My sister in law, Kristi, is coming this evening. I can't wait to see her baby bump!! 
               I've been playing my guitar and I'm working on some new songs and some old ones that I have forgotten. That has been fun. My Friday night is going to be low key.... guitar, download some pics, some phone calls, work out my arms, do some reading. Kinda nice to have time to do these things. I only have 2 more weeks till I can go home.... only.