Middle of the night ramble.... don't read if you don't want to know.... this is real life.
So those of you that know me understand that I have always had issues with sleep.... except when I was an infant, but that is another story. Maybe it stems from my type A- high strung personally that serves me well in the professional world, but then gets confused with my hippie type B that just wants to float around and do what I want when I want to. So long story... trying to be short... so maybe I can get some more sleep.... (Heather, don't think about sleep when you need to sleep, blah blah blah) or maybe not. Whatever.
Tonight I really tried to be proactive with getting to bed earlier because I didn't sleep the night before and my days starts around 3:45, hey I get another hour not to sleep tonight... awesome. I'm on a TON of medications. I don't understand all the IV chemo's I've been on and maybe won't try because I don't have a choice on that. Outside my donut... my PCP folks. Then the next layer of meds are for the side effects of the chemo, stuff like the steroids that makes me nuts, constipation meds, and some other stuff. Those meds also have side effects.... so as you can see the meds can just keep going and going till something kills ya. Thank you Lord that I have been an SC for this long and understand the whole med cycle people get into. I have to concentrate my energy on the choices I do have to make about the meds I should take or not take. For example, I didn't take any pain meds yesterday, what was the point, I would have had to take more constipation meds. I was not in the bad of pain I guess. I do have some choices.
So back to sleep.... the story of sleep... not real sleep. So I took ambien some when I was pregnant to get some sleep the nights before I had to be on the road all day. I was diagnosed with cancer and so was my mom. So I took it like 1-2 nights a week and went on without sleep and just dealt with it, worked for me at the time, used the med for the purpose. After Evalyn was born I have barely used it at all. So I have taken it in the hospital for the past, I don't know, some days. But I still couldn't sleep. So tonight I took 2, no big deal, I didn't sleep the night before. My choices were anti anxiety pills, ambian, no hope of any sleep, etc , I have to take some type of anti anxiety with the steroids, or I will literally be trying to run this hospital, maybe even your life.
So..... back to the sleep. I had it all set up, turned computer off, just some light reading, doing what I do at home to get some sleep when I'm not jacked up on meds. Then I had to get my vitals done... get them done a zillion times a day. It was going to be tuck in and all good. Down the list- bladder good, yep, bm, yep, feeling ok, yep, got your weird leg things you have to sleep with, yep, Bp, good, blood sugar, great, pain in check, yep, yada yada..... Bam..... low heart rate.... so close. Have to call the doc, get an EKG, etc etc. Freaked me out, I thought my heart rate felt high so apparently I don't know when it is or isn't. So before I got the rest of the results back to see what was going to happen... strapped to a heart monitor, more test, death ect. Those 2 ambian kicked in and I fell asleep sitting up, not finishing my bedtime routine, not knowing if my heart was going to keep beating.
Around the time change I was shocked out of bed with an amazing dream, I've always dreamed a lot, see this one in another blog, too cool for this one. When I woke up I hurt so bad in my tummy, tried an ensure last night, big mistake,freaked out about the heart thing and still not knowing what happened, and with the amazing dream, I still have not been back to sleep...... Nurse: do you want something for you tummy? Me in my head: more meds more side effects Me: nope. So I started the bedtime routine again, important for babies, my peeps, and for all of us. Thought I had it, but tummy still hurt, then sleep anxiety was in full force by then and I'm analyzing my dream from God, and all the hospital noises, just didn't work. So at a certain point I just have to give up.... maybe I'll get a nap later, maybe not.
At least I'm prepared for my mini meeting with the doc in the morning.... on the list- keeping upper body strength, Evalyn is growing fast, medication side effects and where to go with them to reduce risk of addiction or more side effects, can I have a glass of wine for the love of God!!!!!!!, getting a port in instead of this pick ( too hard to explain, look it up if you want to know)
All in all, now my heart is ok, except still broken for my baby girl and everyone having to feel pain because of this. This will make all of us stronger.... just wait!
If I had to go through this tonight to have this prophetic dream, then so be it. Let it be let it be Let your will be done Lord.
So those of you that know me understand that I have always had issues with sleep.... except when I was an infant, but that is another story. Maybe it stems from my type A- high strung personally that serves me well in the professional world, but then gets confused with my hippie type B that just wants to float around and do what I want when I want to. So long story... trying to be short... so maybe I can get some more sleep.... (Heather, don't think about sleep when you need to sleep, blah blah blah) or maybe not. Whatever.
Tonight I really tried to be proactive with getting to bed earlier because I didn't sleep the night before and my days starts around 3:45, hey I get another hour not to sleep tonight... awesome. I'm on a TON of medications. I don't understand all the IV chemo's I've been on and maybe won't try because I don't have a choice on that. Outside my donut... my PCP folks. Then the next layer of meds are for the side effects of the chemo, stuff like the steroids that makes me nuts, constipation meds, and some other stuff. Those meds also have side effects.... so as you can see the meds can just keep going and going till something kills ya. Thank you Lord that I have been an SC for this long and understand the whole med cycle people get into. I have to concentrate my energy on the choices I do have to make about the meds I should take or not take. For example, I didn't take any pain meds yesterday, what was the point, I would have had to take more constipation meds. I was not in the bad of pain I guess. I do have some choices.
So back to sleep.... the story of sleep... not real sleep. So I took ambien some when I was pregnant to get some sleep the nights before I had to be on the road all day. I was diagnosed with cancer and so was my mom. So I took it like 1-2 nights a week and went on without sleep and just dealt with it, worked for me at the time, used the med for the purpose. After Evalyn was born I have barely used it at all. So I have taken it in the hospital for the past, I don't know, some days. But I still couldn't sleep. So tonight I took 2, no big deal, I didn't sleep the night before. My choices were anti anxiety pills, ambian, no hope of any sleep, etc , I have to take some type of anti anxiety with the steroids, or I will literally be trying to run this hospital, maybe even your life.
So..... back to the sleep. I had it all set up, turned computer off, just some light reading, doing what I do at home to get some sleep when I'm not jacked up on meds. Then I had to get my vitals done... get them done a zillion times a day. It was going to be tuck in and all good. Down the list- bladder good, yep, bm, yep, feeling ok, yep, got your weird leg things you have to sleep with, yep, Bp, good, blood sugar, great, pain in check, yep, yada yada..... Bam..... low heart rate.... so close. Have to call the doc, get an EKG, etc etc. Freaked me out, I thought my heart rate felt high so apparently I don't know when it is or isn't. So before I got the rest of the results back to see what was going to happen... strapped to a heart monitor, more test, death ect. Those 2 ambian kicked in and I fell asleep sitting up, not finishing my bedtime routine, not knowing if my heart was going to keep beating.
Around the time change I was shocked out of bed with an amazing dream, I've always dreamed a lot, see this one in another blog, too cool for this one. When I woke up I hurt so bad in my tummy, tried an ensure last night, big mistake,freaked out about the heart thing and still not knowing what happened, and with the amazing dream, I still have not been back to sleep...... Nurse: do you want something for you tummy? Me in my head: more meds more side effects Me: nope. So I started the bedtime routine again, important for babies, my peeps, and for all of us. Thought I had it, but tummy still hurt, then sleep anxiety was in full force by then and I'm analyzing my dream from God, and all the hospital noises, just didn't work. So at a certain point I just have to give up.... maybe I'll get a nap later, maybe not.
At least I'm prepared for my mini meeting with the doc in the morning.... on the list- keeping upper body strength, Evalyn is growing fast, medication side effects and where to go with them to reduce risk of addiction or more side effects, can I have a glass of wine for the love of God!!!!!!!, getting a port in instead of this pick ( too hard to explain, look it up if you want to know)
All in all, now my heart is ok, except still broken for my baby girl and everyone having to feel pain because of this. This will make all of us stronger.... just wait!
If I had to go through this tonight to have this prophetic dream, then so be it. Let it be let it be Let your will be done Lord.
Heather! I just got the email from Papa Bill with the link to this site. I sent it to my mom too because I know she wants to know how you're doing as well. I've been praying for you and will continue to do so. I have several doctor's appointments up at Emory the day before Thanksgiving so me and mom will stop by to visit for a little while. I love you. I know you're strong and will make it though this.
ReplyDelete<3 Anna
Anna Warren
Heather,
ReplyDeleteI just want you to know that I love you so much. You are such a strong beautiful woman. I know the next months are gonna be hard, but you have so much love, prayers, and support all around you. I'm thinking about you always and anything you need let me know. Love you!!!
Jennifer Rei
Heather,
ReplyDeleteI loved reading your journal from beginning to end - it's just like listening to you talk about you day, Wallace, Evalyn, everything as if it's actively going on. Don't stop, just keep speaking your mind. Ramble if you need to - we'll all listen.
Frank sends his love. I miss you very much, I'm glad that I'm healthy now, so I can help out with your precious daughter and your wonderful husband.
I will see you soon. Let me know what you need. My brothers and sisters all want to know what you need from them, just let us know.
Love you,
Carol & Frank
Carol Cooper
carol_cooper@tpaofgeorgia.com
I just wanted to say YOU ARE AWESOME! <3 Much love sent your way! We prayed for you this morning at church and I feel the same way you do about God having an amazing plan! I woke up to the song "praise you in this storm" Its a personal reminder to me that God is good all the time! Nite Sweety!
ReplyDeletecarrie chatham
Hi Heather, we've talked to Jonathan (Lanny to us), but we love caring bridge as a way to keep up with you everyday. We're praying that the nasty chemo will do its job and that you will soon feel better. We truly believe in the power of prayer, so you're covered with them at this moment. Our church and friends are praying for you, Lanny and Evalyn. You are one tough gal and we know you can hang in there. We love you three...Luanne, John, Allison and Andrew
ReplyDeleteLuanne and John Cape
HEY!!! Just read your blog...you are amazing....very inspiring!! Know that you are constantly in our thoughts and prayers! Love you and hope that I can come see you again this week!
ReplyDeleteJill Barefoot
Poppa, you are the coolest man I know. I miss you both too!!!!!
ReplyDeleteHeather Cape
heather,you are amazing,you should take up writting among the other many things you do.
ReplyDeleteDan,kathryn and I admire your spirit and it will pull you through all this along with our wonderful Lord.
take care,ourlove and prayers are with you and family, Judy
judy kelty
Dear Heather,
ReplyDeleteIt's hard to comprehend sometimes all that is going on. I know if it's hard for me just to think about it, I can only imagine whats going through your mind. I do know that God has great things in store for you in the future. Our faith is like muscles; it only grows when exercised. You looked really good yesterday; you amaze me sometimes. I know you really miss Evalyn, but try not to worry about her. She's fine, she's a really good baby. Mom and I are enjoying the time were spending with her. I promise you she won't forget you. I love you! DAD
Ken Reid
canjuggle5@yahoo.com
Heather
ReplyDeleteWe miss you so much.
You are in our thoughts and prayers every day.
Wish we were able to come see you
Keep your chin and spirits up.
We love you very much,
Granny and Poppa Bill
Granny & Poppa Warren
Thanks everyone.....Shanna, I'm going to have someone with neat hand writing write that verse on my white board today!!! Thanks for the legal pads, I can be messy with them! Sean thanks so much for that devotional, it was wonderful and will continue to be! I lovvvvved it.
ReplyDeleteI love you all
Heather Cape
Very good idea to have this blog to keep everyone up to date on what's going on with you and a way to share your thoughts.
ReplyDeleteHeather, you are such a strong, amazing person and I am blessed to be your cousin. I loved our talk yesterday...you astound me with your positive attitude, sense of humor and will to help others around you when it would be so easy to just dwell in sadness and negativity.
I am no Biblical scholar of course, but one of my favorite verses was always 1 Corinthians 13:7 -- "Love bears all things, believes all things, hopes all things, endures all things. Love never ends." You are surrounded by love and light!
Shanna Freeman
Heather, some encouragement from one of my devotionals this morning.
ReplyDeleteThis is today's reading from Oswald Chambers', "My Utmost for His Highest". One of my prayers for you, besides a complete healing and restoration of health, is that you see the Holy Spirit at work in your life. You are in a place to be uniquely used by God in a powerful way. Be open and available to what He leads and guides you through. He will certainly be with you throughout it all!
The Undetected Sacredness of Circumstances
We know that all things work together for good to those who love God . . . —Romans 8:28
The circumstances of a saint’s life are ordained of God. In the life of a saint there is no such thing as chance. God by His providence brings you into circumstances that you can’t understand at all, but the Spirit of God understands. God brings you to places, among people, and into certain conditions to accomplish a definite purpose through the intercession of the Spirit in you. Never put yourself in front of your circumstances and say, “I’m going to be my own providence here; I will watch this closely, or protect myself from that.” All your circumstances are in the hand of God, and therefore you don’t ever have to think they are unnatural or unique. Your part in intercessory prayer is not to agonize over how to intercede, but to use the everyday circumstances and people God puts around you by His providence to bring them before His throne, and to allow the Spirit in you the opportunity to intercede for them. In this way God is going to touch the whole world with His saints.
Am I making the Holy Spirit’s work difficult by being vague and unsure, or by trying to do His work for Him? I must do the human side of intercession— utilizing the circumstances in which I find myself and the people who surround me. I must keep my conscious life as a sacred place for the Holy Spirit. Then as I lift different ones to God through prayer, the Holy Spirit intercedes for them.
Your intercessions can never be mine, and my intercessions can never be yours, “. . . but the Spirit Himself makes intercession” in each of our lives (Romans 8:26). And without that intercession, the lives of others would be left in poverty and in ruin.
sean zuniga