WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Thursday, March 24, 2011

Day -5: Stick a Pen in me, I'm suffocating.

                      I'm pretty much drifting in and out of consciousness while I'm writing this  because I'm so tired.                          
If  I leave out an important part of the story that you can tell, feel free to ask me. See just right then, I started zoning out.  They had to really increase my pain medication last night due to the muscle and bone pain, along with my neck swelling up. I looked like a swimmer, being bald and having a huge neck. I think that's what strong swimmers look like. I have a pretty high pain tolerance and a high tolerance to medications. We tried stronger pills but the pain was so bad that I was still crying and shaking, so we started some IV pain meds. These helped the pain immediately, but also made me feel like a zombie, and the Zofran was already doing that. Now, this what happens, you have a side effect, that has a side effect, etc
Cancer=Radiation= bone/muscle pain/ swollen glands= pain medication= lack of concentration/
 itching skin= anti itch medication = freak out and think your going to die.
                  It was 2 am in the morning and I had not slept at all do the the pain and itching. They gave me some benadryl, nothing new to me and that's when it happened. She was giving me the benadryl when all of a sudden I sat straight up, my throat felt like it was closing in on me, and I COULD NOT BREATH. I'm not kidding. The look on the nurses face was she was just as  freaked out. She was asking what was wrong but I couldn't answer. I made the "choking sign" because I didn't know what else to do. Finally, I managed to push out "Get Help." At that point, I was able start taking very small painful breaths that sounded like some sort of animal . I was really thinking that someone was going to have to cut my neck so that I could breath. Then, slowly, I started breathing better and better. That was of course not before the adrenaline kicked in since I thought I may die. Um, I think I decided suffocation or drowning is not the way I want to go . I've had 2 more rounds of radiation today, a Cat Scan, a ton of medication and have barely been able to stop going and waiting, going and waiting. We got the results of one of the test and it looks like I do have the common cold. I'm getting some bags of "stuff", one of the me is IV Immune Globulin.
                     The highlight of the day was that my Mom brought Evalyn by for about and hour. She was so happy to see me and looked cute in the pink and white apple outfit that Grandma Kim bought her. She is already wearing some 12 month ! We put out a big blanket on the hospital lobby floor and played for a little while. Sounds gross, but it's a beautiful lobby, like a house, and the blanket will be washed asap.  She knew it was her mommy behind the mask and just smiled at me. Puppy Dog is her first "sign." that she has learned, but I think the first spoken word will be DA DA. He deserves it :).
                      Uhhhhhhhhhhh... they just came in here saying I need an EKG cause my heart rate is too high. Sometimes I cuss in my head and don't it out loud, I need to work on that.

No comments:

Post a Comment