WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Saturday, July 9, 2011

Spiritual Waves


            
           I’ve been thinking about this for a while, and thinking about how to write about it. I just kept going into circles so I decided to just write and let my hair down.  My chin hair down that is, I shaved my head again. I got rid of the chin hair too. God, I’m obsessed with hair. It’s not my fault, it didn’t have to come back. I am enjoying mascara again, but this hair everywhere is doing nothing for my self esteem. 
                There are times in my life, and yours I’m sure, where you feel closer to God, or people, than others. Makes sense. But why does this happen? During my hospital stay during the transplant I felt so alone and did not hear from God in dreams, what I could read which was not much, and didn’t feel his presence. Still, I knew he was there, just being silent for some reason. When I left the hospital and recovered a little, all of a sudden I had an intense hunger for the Lord, for the word, for prayer, to FEEL the love and joy of God. Then 2-3 weeks later, I had that bad steroids crash and after that was not able to get back into my routine (getting up at 6,  devotion, exercise/writing, then getting Evalyn), so it through me off . Something through me off.  I’m still off. So after I was first off, I didn’t have the hunger as much and I felt that I was wrong. Did I do something wrong? Did I not seek the kingdom hard or long enough?
                Even though I couldn’t make it to my 6 am appointment, I still tried to get my devotion in at some point during the day but there are always distractions and heck, it may be nap time and I’m rereading the same thing over and over again. After the chemo and radiation it seems to be even harder to focus, although my brain has always moved at a faster pace than most. I always thought it helped me burn calories and why I WAS such a bean pole. Tangent: No I’m not getting fat people, well I am, but it’s the steroids. I weigh more than my husband, the same as when I was pregnant and more than my mom or sister. So give me a break if you think about saying “your filling out” or something stupid because I’m still on steroids and may snap. Hmmm… so back to prayer, meditation, and sweet things Jesus likes me to write about.
                So I’m mulling this over in my mind going back and forth between insane thoughts such as “ well if the spirit left maybe be need a break from our intimate relationship we were having” or “ I really must be doing some wrong and maybe should spend more time DOING something instead of sitting here.” If you only knew what went on in my brain. So I decided that, like love, seeking the Lords face is a choice. You have the infatuation love that you feel toward a lover and then you have feel love that develops over years of trails, success, and the choices we make. I don’t always feel like taking care of Evalyn and sometimes it’s not about my physical state. I’m I a bad mother for saying that, I don’t think so, just too many people are afraid to be honest.  I don’t FEEL like showing love to the idiot, obviously I have other issues to work on, in my way at the store that may need my help so they don’t have to hunt down a  phantom  employee. I don’t FEEL like always showing love to my husband and thinking about how I say something not just what I say. And sometimes I don’t, sorry sweetheart.
              Thinking and praying about all that made me realize that all this spiritual ups and downs are not about feelings. For me it’s about obedience. The devotion book that I just love…. Come away my Beloved, said in one passage “ Holiness is not a feeling-it is the end product of obedience. Purity is not a gift- it is the result of repentance and serious pursuit of God." God has called Jonathan and I to do a devotion together every day we possibly can, so we do. Do we always want to too? Nope. God called us to work through this last semester so Jonathan could graduate despite that to the world it looked like a crazy thing to attempt. It’s not about what the world thinks. I believe there will  quite a few more risks that our family will take and if we truly seek God, it will work out. Does that make it any less frighting. Hell no. Makes me want to have a glass of wine at the thought of what all this could possibly be preparing us for. God have mercy and grace.
                 Once I decided to pursue the Lord even when I don’t hear or feel him, there is the old problem with prayer vs meditation. As it says in the book, Eat Love Pray, prayer is easy. I can ramble all day on at least one side of my brain about this or that, or this person, or even my dogs, for safety, Evalyn,  for less pain, yada yada.  But to be still. Whew!  Most of the women in my family I like to think of as birds because we can be flighty and not focused. I don’t know much about birds but that is how I feel right now.    sec for ourselves to have a bathroom break since we have been holding and now may be wishing we had kept that extra pair of underwear in the car. I’ve decided that is actually a good idea. God usually has to send me a neon sign, or cancer, to get my attention. Geez, I’m so stubborn and rebellious it is ridicules. I have the urge to be flea dipped or something, maybe the monks will make my shower water holy water tomorrow.
                      Be still and know that I am God. Be still!!! As you know, I’m at the Monetary of the Holy Spirit for the weeked for a writing/journal workshop.  I decided to do my yoga in my room due to the heat the mosquitoes that have breeded with the ferrel cats around here and  have not responded to my usual genius effort to warn them off. The yoga feels good and I start of well, repeating part of a verse that I had read this morning about being a living sacrifice and renewing my mind. (Romans 12:1-2) Then I went to clear my head and just listen, even if there was nothing said. Unfortunately, I was still talking to myself.

What will I have for my snack later, my brain said.
Shut up.
 Man that baked chicken today at lunch was the bomb, I  should write down to remember to get the recipe.
 Do not move a muscle!
When we get home we should change out some of the frames in the living room.
Jesus! This is just how Elizabeth Gilbert (eat,love, pray) explained how she felt when she went to India and was trying to meditate.

     I know, I that it is completely stupid to be so hard on myself sometimes. But don’t you point a finger at me because I know I’m not alone. Only recently, because of my husband, there are times I can just watch a crappy show and BE with because he likes it. I’m still working on the sports. Why do we always feel we have do more, More, MORE? That we are not enough and just because we have not reached the place where God had has molded us into his perfect will, when we are trying our best. It’s the journey right? Journey on my friends and family. Let’s seek out ,  obey the Lord and trust him to do his great work in and through us. 




3 comments:

  1. I can't speak to most of this, I'm not the person to do it. However, I used to get really mad at myself when I did yoga and tried to meditate because I wasn't "doing it right." You're "supposed" to hold poses a certain way, you're "supposed" to clear your mind, all that good stuff. It's not very productive, or enjoyable, when you're harping on yourself the whole time. Nobody can totally clear their mind. Just not possible. So now I just let the random things pass through (Do I have enough yogurt for Emilie's breakfast? When is my deadline again? I need to buy more towels) without judging myself. TOO much, anyway.

    Speaking of judging, I DARE anybody to say anything about you filling out or getting FAT pr anything like that. Come on...surely most people know that it's one of the most common side effects of long-term steroid use. And surely MOST people would realize that, you know, that's something you might be just a little sensitive about. So you just go ahead and snap and show them ANOTHER steroid side effect! =)

    I hope you have a wonderful time this weekend!

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  2. Heather, you have stated beautifully what we, as Christians, experience. I have to remember that it is NOT about feelings but FAITH. You have gone through so much and continue to, but you find ways to encourage others!

    I continue to pray for you.

    Blessings,
    Susan Hill

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