After today, meaning Sat, I hope that I have grown new bone marrow in my toes or somewhere, because nothing else productive happened. The night before I went with my cousins out to eat and to a jewelry fashion show and drove home pretty late but wouldn't have thought it would have put me in bed most of the day. I even took it easy on Thursday and Friday morning knowing that I had to drive and would be up late. I missed the free dance class that I wanted to go to today and didn't do any of the craft painting I wanted to get completed while Evalyn was at Grandma's. You know I hate to waste time. Jonathan said that he kissed me bye when he left to get Evalyn and I didn't wake up or move. I'm the lightest sleeper in the world and would normally wake up if someone touched a door knob.
Right now, it's 2:30am, just kept waking up I guess since I was in the bed all day. I didn't even have energy or the humor to write my new blog " Fat chick with a Mohawk". I hope to have more energy tomorrow, we will see, and if I don't maybe I'm working on growing new bone marrow. Now I'm going to watch episode 30 of The Andy Griffith Show. I'm waiting for Happy Days to get added on Netflix... they should take requests.
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Bless your sweet heart Heather!! I found your article via my facebook feed for Be The Match. I am a survivor of AML - 4 years out of a cord blood transplant in Dec. So happy you found a donor and even more excited to see your faith in our God who knows it all and provides all we need. Hoping you have a wonderful week with your beautiful family :)
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