WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Tuesday, September 6, 2011

Danger Danger Will Robinson

Evalyn loves to just sit in her Grandpa's lap!!
                                                 Please watch this Video from LOST IN SPACE


             It's been an eventful couple of days. We went to Cartersville for a family weekend and had some good food and lots of puppy love. I love the show Dogs 101 and also watched some Leave it to Beaver's, without commercials, and had my parents DVR set to record many of them. I do not generally sleep well anywhere else do to my obsession with my temperpedic bed, so realize at this point, I'm in a 3 day sleep deficit.

This may have been the hit that did it....
                       Michael and Kelley Gamboa had their baby girl, Emma Claire, on Sat, yes another beautiful Gamboa girl, but we have not had a chance to meet her yet. We hope to this week! The family played pool volley ball which is a favorite but we have not been able to play all summer long. When I say "we" I mean everyone else except me, Evalyn, and the pups. I'm still having some skin issues and didn't want want to risk a trip to Emory just to beat someone at volley ball. Plus, I was taking pictures of the dogs... very important job. Actually, that's true, but most of all, I have to choose how I use my energy wisely. Most of us do not work out on a consistent basis. My sister is in awesome shape and my brother is young.... Mom, Dad, and my hubby, well they are hurting. We woke up yesterday morning and left Cartersville as soon as possible to out drive the humongous storm coming our way. Poor Chloe has a tornado warning system inside her and she alerts us by pacing, panting, and jumping on the bed during what would be my last attempt to take a nap for 36 hours, little did I know.
Mom couldn't move the next day... not sure if it was Evalyn or Volley Ball.

Jennifer brought a new friend for us to meet. I liked him so much I had to ask him what was wrong with him. Don't try these cool moves at home and yes, those are Chaco sandles I am wearing.


                Last night, Jonathan's head, stomach, and back started hurting so bad, he couldn't really do anything. I was up in the middle of the night taking care of him while trying to figure out how I was going to take care of everyone the next day and myself. I was already pushing it by planning on taking Evalyn to meet the Meredith, who delivered her, at my appointment to have my IUD put in for hormone replacement therapy, since I didn't have a sitter. We were able to move Jonathan's "check up" appointment from tomorrow, to today, so hopefully he can go to work today. No work, no pay. He doesn't even get paid holidays now. I told him I didn't care much about Christmas, we could go set in his cubical that day and make a 100 bucks :) We will order duck, with the neck still on it. :)
            Evalyn woke up with crazy diarrhea this morning but it seemed to just be the teething issue again. We are keeping an eye, and a nose on it, and may have to take her to the doctor tomorrow. Never the less, you really don't want to take an exploding baby around and boy did she... right in the child section of Barnes and Nobles while we were waiting for Jonathan to get out of his appointment. Thank goodness I had some of the bigger BE the Match posters in the car to put under her while I changed her. Now that's funny, I don't care who you are. This was of course after my appointment where it took two uncomfortable tries to put the IUD in while Evalyn was crying, horrified at what this person was doing to her mother, all the while making very loud farting and general diarrhea sounds. Evalyn, not me. Evalyn was very impressed with the kids section at the store and was very happy even though she was missing her nap, a usual reason to have a meltdown. Instead she found a little stuffed animal, not a book, that she loved, because it looked just like Chloe. Considering the traumatic experience, I bought the $7 toy, writing it off as a "well she is sick and has to put up with all this" gift.

The love Beagles.

                    Jonathan had to end up getting blood work and a CT, we are awaiting the results. All plans for the day were cancelled and changed. The laundry is not done, dinner did not get made by us for the Gamboa's or Emma's feet kissed by me, banana's were not purchased, the goodwill pile is still there, and I can't remember when I last took a shower. I'm suppose to be leaving on Thursday to go to the beach with my friend AJ and a lot of her friends for a pre-wedding weekend. I do really hope that I get to go... I already paid for it, got permission from the doctor and have called a real bed. I have plans to ride a bike on the beach, eat oysters, read Middlemarch, practice kids songs, see Charleston for the first time, visit with an old friend from college, smoke one cigar, and a drink bloody mary. Is that too much to ask? Lord, have mercy. I'm the oldest of the group, ha ha. Jonathan's had to remind me that I am 31 instead of 30 when I was unsuccessfully trying on my old prom dress on. It went in the good will pile, then the "maybe to sell pile". It is very important to me to have these piles gone before I leave but plans do not always work out and piles I may have to let go. My Grandma Judy and mother in law Carol are coming to look after the house and the family while I'm gone. Pray that all goes well :) I'll keep you updated on Jonathan when we know more, just pray that the Lord gives me energy to take care of everyone and myself. I might have to call a code red if it gets any worse.
Evalyn was the only one that really knew that the Dawgs would not win that night.

She said Uncle Daniel this weekend!


and Wallace caught his first Frisbee! 

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