WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, September 12, 2011

Medical Update 9/12

Well, I guess I didn't do a good job keeping you updated on Jonathan. The CT scan came back negative and his lab work didn't show much. Come to find out about 6 other people became sick after our Labor day picnic, 2 ended up in the hospital. Cultures didn't show anything but we are assuming it was food poisoning. I was exhausted from taking care of Evalyn and Jonathan that the best thing for me was to go on my trip and let Grandma's take over. I ended up getting sick on Thursday and was sick all Thursday night, in a hotel, with friends. No sleep.Then I started to feel better but never had an appetite till Sunday morning, although I insisted on eating some seafood if it killed me. Then Friday night, a sweet girl from the group that went to the beach, got food poisoning and was puking her guts out in the middle of the night. I've never heard anything like it. She is feeling better now, but not many of us slept. So I spent most of the day Sat sleeping and laying around, most the night getting hit on by strangers during AJ's bacorrette party. Good self esteem boost! It must have been Lola.  I had a good time, but the beach was still too hot and sunny for my tender skin. I mostly just recovered from the week before by sleeping a lot and now I'm trying to recover from that trip. Heck, I'm just trying to recover period. Picks to come soon!
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