Seems hard to concentrate this morning and even not fall asleep right now. I got up up 6:30 am to get some things done, trying to esp a routine with all my meds, appts, and activities and from 7-8 I still feel rushed. It's already 7:40 and usually I start my devotion by 7:30. I already took some of my lunck meds though so I don't have to worry about those as much, since I already forgot twice to check my BS before lunch last week.
As you know, we are still looking for a church for Sunday mornings or Sunday night. Jonathan and I are happy with just attending a small group once a week and doing our own devotional times and sometimes together. I truly believe that a small group of 6-8 people that you can be totally honest wiith, grow with, and truely have relationships with than just showing up on Sunday morning, feeling good about it and waving bye, see ya next week. Not that everyone does that at all. We know God wants us to get in church for Evalyn at this point and one day use mine and Jonathans's gifts of music and leadership. We try to try a new church every other week, We skipped a few weeks there but plan on going some this Sunday. The church that I have in mind is not too small where we will like we have to start jumping in right away, because we just have too much on our plate, but not big enough that we feel like we could just watch the podcast and get the same thing out of it. I also feel that where the church money goes is very important to our family. We found this really small church and we loved that every 7th Sunday instead of church they went somewhere to volunteer their time and talents. Do you know how many people are sitting in nursing homes with no one to visit them, or a child that is at the children's shelter waiting to go to the next foster home? Breaks my heart. Right now I know that my calling is to spread the word about Be the Match and will be helping with setting up the fundraising team this week.
The verse from Daily Fast Fuel
Acts 2:42.
They devoted themselves to the apostles teaching, and to fellowship, to the breaking of bread and to prayer.
Today, I'm suppose to go to yoga this morning, Spend some time with my sister, I think she is going to drive me to Madison, and we will have lunch, then a counseling appt with Jonathan and someone he has been seeing for a while. He's one of the most sane people in the family and he is one of the only ones that see someone often. Then back to home base and come up with a good excuse not to make dinner tonight. I'm super tired but hopefully I will snap out of it or I will just cancel something... but I hope not.
Time to check BS and get a little girl up! Wait till you see our St. Pat pics!
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Monday, March 19, 2012
Subscribe to:
Post Comments (Atom)
The more we get together, together, together
ReplyDeleteThe more we get together, the happier we'll be
For your friends are my friends
And my friends are your friends
The more we get together, the happier we'll be
Thanks for putting that in my head! Hope you had a good day.