Medical update 3/23 - Don't know nothin'

Today, last year, I was starting my first day of radiation in prep for the BMT. WOW, a year since the worse thing you can put in your body was killing me. Drah.

It was dreadful.

Staying still that long.... more dreadful. 

I have not blogged in a few days because I was in a lot of pain, mostly in the middle of the night and was getting exhausted. I didn't know anything more so I didn't have much to say. You can always get in touch with Jonathan if you have not heard from me in a while. I was admitted on Tuesday thinking that I would be here one night, and do some tests that night or the next morning. I brought some stuff to do but mainly I wish I had brought my guitar.  Plus, being on this pain medication, I can hardly concentrate long enough to write anything. There has been a lot of self-advocacy since I have gotton here. I think I haven't spent as much time here on this side of  the hospital as my VIP status seems to be working better in clinic now, and my vision keeps coming and going.    There I go nodding off again.

Tues night, I was just so frustrated about being in such a  big hurry to get here for nothing. I got here and didn't get any pain meds til almost midnight. On Wed, I didn't get any tests and luckily, my sister-in-law came and brought lunch and I was able to meet baby Will. My mom came also came and brought food and we tried to watch a movie, but it just wasn't worth it and I kept falling asleep. Later my cousin came and brought Locos and was so yummy, I had Jennifer bring me the same thing today. I really realizes later that my cousin Andy is one of my best friends. AWWWW. Somehow you keep alluding my camera..... In the mean time, my Mom, Daniel, Dad, Faye, and sister Anna and the watch dogs are holding down the fort.

My sister was worried about me and got her days of work switched. She is so sweet. 

I finially had an MRI today (Thurs). They really are awful. I feel bad that I didn't realize how uncomfortable they can be for someone my age, let alone my poor grandmother. I was there for 3 hours and someone finally said ok, that was enought for that day and we probably get the hips done today.  There was no help button... wish someone had me on tape yelling, "is anyone there" "my feet are cold!!" "you forgot to turn the music back on", none of which was heard. By the time I got out of there, I was a fragile wreck. At least I get to listen to music off of pandora, not my Ipod though, because I killed it in sweet tea :). I didn't get to see Dr. K today and that was a little disappointing. I know that he is making the decisions though.

We snuck out of the hospital for a treat. Needed some veggies. 

Today, I get more blood work, more MRI's, then who knows.... I don't know if I'm going home today. I do know that I'm not eating this food. Other goals will be to fill out a ton of paperwork to see if we can qualify for  more assistane with medication and copays to offset things like needing a small suv and sadly a new roof. One of my fav uncles is in ICU right now so keep him in your prayers. He said that he is not in a lot of pain, which is great. I will never forget the times as an early adult he would slip me some extra money because he knew I was broke. Today my mom, Evalyn, and I are suppose to be spending time doing some stuff together... maybe I can talk her into staying longer. I miss my mom but glad that she is able to come be with her granddaughter.

At least I match. 

Now, it's time to get some coffee, have a devotional, maybe some yoga, work on the family calendar, figure out our babysitter schedule, try to sell things on ebay, but... I won't be changing diapers, which doesn't sound so bad, I miss my little girl....  work on some fun blogs, like Evalyn stuff and our St Pat's day, and try to find something decent to eat. Maybe, go to the musaem if I get bored since it is free for patients, anyone want to come on down?