WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Friday, March 16, 2012

Let me tell you about a great week

I was going to write a blog today about what I call my "regimine" that included meds, slathers. sprays, drinks, teas, Evalyn and dog meds, but it has been such a good week compared to so many people in the world and I didn't want to shock you too much right before St. Pat's Day. So I'll do that one later. 

I'll start with today. Evalyn is 20 months old today! Here she is with her Golden Bible and her Easter story book. It's so sweet that she already prays with us and says Jesus and chooses to read books about him. This week I found relief in starting going back to the chiropractor, in my morning devotionals, the man Ivan Summer at the Daily Grocery that helped me find Aloe Juice, A man named, crap forgot, he was playing the violin on Clayton Street, I gave him a dollar and we discuss his MS. Athens was so nice today. It is still spring break and I was able to find so much peace in not having to wear a mask and just feel a little normal. We also had two different people make us meals and was taking out to eat. Jonathan and I have big plans this weekend and we are super excited. This includes a free hotel, free childcare, free tickets to world of coke, a St Patrick Day parade, and free concerts during the day at Centennial Park. The next morning we get to see the end of a half marathon that friends are running for the L&L society. 

Here is Evalyn reading a book to her Poppa Bill. 


She is learning new words and speaking sentences at a crazy rate. It is almost overwhelming because I know I can't remember everything. She has Yellow and Purple down now, she can drink out of her cereal bowl and say most of the words that she learned how to sign. She  loves to dance and has amazing rhythm. She seems to understand most of what      we are saying, whether she obeys or not, well, it depends on her mood but we are being consistent. Now that takes a lot of energy. She is still eating great and likes to try new things. She is amazed by nature, books, music, art, and anything mommy is doing to herself. 


She allowed me to paint her nails and tonails  with purple glitter.

Last week, my mom came and we went to Locos to eat, it was so yummy. My mom had to take Evalyn to the doctor early to eat her first live vaccines and then she had to go to my mom's for two days so I wouldn't get the chicken pox.


Grandma kim helping her learn how to color. Evalyn loves the fried pickle chips, yummy. 

 While Evalyn was gone, we went to Cine to watch the Artist. It was even better the second time, and at this place you get to have a drink while you watch the movie. We had some kind of Duck beer, it was good. The soundtrack is beautiful.





With the nice weather this week, we were able to take some golf cart rides (GCR) and take Wallace on a run 


We ran into my Poppa bill and his dog Tuffy. Too pretty to be a boy, the dog that is. 

Our family and the mean green golf cart. 

Evalyn is loving to climb right now. She climbed up and told her Daddy to sit  right there.






My beautiful Granny. 

Silly Poppa bill, he is already teaching Evalyn how to honk noses.

We had a great time. Judy , Evalyn, and I stopped at a  consignment store. Evalyn did so well following her Mommy and Aunt Judy.  Judy and Evalyn had fun taking there hair down and reading together 



Loving spending time together! 



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                                                            Evalyn picked these flowers for me.... but not all out of my yard.

God has been so good to us and we are thankful. 

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