WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Tuesday, March 6, 2012

Medical Update... no Emory this week so far.

I wanted to give you a quick update about how I am doing so far this week. No emergency trips to Emory yet, thank goodness for that. There was one night, I felt really, really, tired like my blood was low, but the next morning I was ok. In the evenings, I just feel like I can't move....poor Evalyn doesn't understand. I'm still working on my medication management and trying to get into the habit of doing them around the same time of day. For example, before I get Evalyn up, I'm trying to get up an hour early, do my 3 part eye blah, devotional, whatever else I can do on the computer during my psycho Lucy Ricardo scenes (The lastest being to find a love seat on craigslist instead of a couch so my hubby and I can cuddle more), blog, fall asleep at the computer and snuggle with my new blanky. Then I get Evalyn up, we have breakfast, I take my meds, all of them... pills, sprays, gels... give dogs food and their gas meds, try to remember what day it is. At lunch take flax seed and fish oil with yogart, if we are home, when I'm not, I forget. Things like that, I'm trying to do to get into habits since I can't remember I don't want to have a personal to do list, I might over do it the list and well, I just can't be micromanaged.
AM meds, not counting my two sprays, lotioning down, and eye regime. 




Some of the new medication have made my stomach hurt but other than that, I think I have been doing ok. As I mentioned, it must be the power of God that I do not have bone pain and had enough energy to take Evalyn to story time today, with my mask on, I was a good girl, and manage a healthy lunch. I even have plans to make dinner. I'm am feeling stronger over all, but the decrease in steriods may decrease my belly but also decrease my exceptional super strength. Now, I'm going to Walmart and Lowes, I know crazy, but after this week, I probably won't go for a long time. On with the mask......

Pm meds, not counting eye stuff, and prn pills for sleep and pain

At least they are letting me take Fish oil and Flax seen now. it seems to be helping my skin and hot flashes.
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